The Access to Services Through Knowledge (ASK) Project (2022-2025)

As part of a multi-year project, the NADD Research Team will build upon the findings of Years 1 and 2 of the ASK Research Project to complete additional research targeted at gaps identified in previously completed data collection, including underserved populations living in Florida. The research will continue to focus on identifying community resources used by family members of persons with I/DD, including the ways they identify and share information, assist each other with accessing key resources, refer people to useful resources, and utilize existing web-based platforms that support their role as a caregiver for a person with I/DD.

1. Must be 18 years of age or older. 
2. Must be a family member (sibling, parent, child, grandparent, spouse) and/or legal guardian for a person with I/DD. 
3. The person with I/DD must live in Florida. 
4. Family Member/Caregiver/Guardian can live outside Florida. 
5. Must speak and understand English, Spanish, Kreyol, or French. 
6. Must have used or are planning to use I/DD resources or support services (pre-enrolled persons will be permitted to participate). 
7. Must be able to electronically sign an informed consent form acknowledging their understanding of the project and willingness to participate. 

Individuals interested in participating may complete the online registration form for either a virtual interview or in-person focus group session. 

To access the registration form, please visit: https://www.surveymonkey.com/r/NADD2025

This project is provided by the Florida Developmental Disabilities Council, Inc., supported in part by grant number 2301FLSCDD and 2401FLSCDD from the U.S. Administration for Community Living (ACL), Department of Health and Human Services (HHS), Washington, D.C. 20201 as part of financial assistance awards totaling $8,889,783 with 100% funded by ACL/HHS. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy and do not necessarily represent the official views of, nor an endorsement by, ACL/HHS or the U.S. Government. 

All information collected as part of interviews or focus groups will be kept confidential. No personally identifiable information will be shared outside of the NADD Research Team. The information collected will be used solely for the purpose developing a comprehensive research report of the findings to share with the FDDC and Mathematica upon project completion.

The results of this study will be included in the Final Research Study Report, which will be published on the Florida Developmental Disabilities, Inc.'s website in Fall 2025. 

For any questions about this project, your rights as a participant, or anything else, please contact Dr. Kristin McGill (Project Manager) at ASKProject@thenadd.org or Jeanne Farr (Project Director) at jfarr@thenadd.org.